Gotta love the "good" days

MOMMY:

OK, so the word "good" is relative. Relative to the last few days, we had a good day today. For the most part, Luis was his happy, silly self. We learned that Uncle Raymond has no belly button (he found that very funny) and Aunt Linda has over 15 watches (Thanks for the watch off your wrist. Now I have the time at hand!). More of the clan came to visit including Uncle Wally & Aunt Angie, and of course Luis' great grandfather, Pépé! Yes, those are Transformer stickers up and down Luis' legs.

Luis & his great grandfather, Pépé

We also had our good friends visit us with their little boy who Luis hadn't seen since they were babies. Luis finally had someone to play with. Unfortunately, they spent most of their time arguing over toys or saying things that upset each other. Regardless, I know Luis would want to see him again soon.

Yes, it was a pretty good day, all things considered. The hardest part was getting Luis to take his oral medications each time. This will be an ongoing battle because the medications will continue whenever we go home. For doing such a good job, he got some yummy chocolate ice cream. That made him happy :)

Luis' diet is a little unusual right now. We try to keep it healthy, but we really give him whatever he'll eat. He was already a fussy eater and now we just want to make sure he doesn't turn skinny on us. The medication is supposed to boost his appetite though. I would like to broaden his palette too, but one thing at a time. 

Today, he asked for a turkey sandwich when he didn't want his cafeteria-made chicken alfredo pasta lunch. Sometimes, we'll get lucky and find packed sandwiches in the Patient Pantry. Luis tried giving Luisito a tuna sandwich and told him it was ground up turkey. As soon as his daddy turned his back, he launched the sandwich across the room. I had to laugh inside. It was a good throw! But I had to scold him so he knew it was not acceptable. He seems to have mood swings, which is expected from the steroids. One nurse said his mood will be like "PMS times 1000". However, she advised us to maintain boundaries. Even though he's our little boy and he's going through a hell of a lot, his behaviour will get worse. So we need to keep it in check.

Tomorrow, Luis should be getting more chemo. His last dose was a few days ago and the only obvious side effects were constipation and his mood swings. I don't really know what to expect over these next few days but we hope for the best.