Back in the WI

Daddy

So we made it home after about a month of constant attention from doctors.  During this short but much needed "vacation" I find myself thinking about all the new worries.  I found myself explaining Luisito's treatments to a friend and I realized something peculiar.  When I spoke about Luisito's treatments I was very casual about it.  I did not speak with the fear and trepidation that consumed me when I first listened to the doctors tell me about his treatments.  Munchkin's cancer has become normal and my speech reflects this new state of affairs.

Watching my son back in his familiar surroundings has been very uplifting.  He asked to be pushed on the swing, he is playing with his toys and generally just being a little boy.  Watching his excitement when he first returned home was priceless. 

He has been off those stupid steroids for about a week and already his face shows signs of slimming down.  His mood seems to be improving a little as well.  He will need to take the steroids again in the later months of treatment but never with the same frequency of the initial month.

We got a chance to view the next course of treatments in store for him and they include, more spinal taps, Vincristine and some new drugs but no Daunorubicin.  These news drugs come with their own bag of horrors but we will just have to wait and see how he responds to them.  So far he has not had it too bad.  Of course I can't feel his pain but I think the secondary medications are helping alleviate some side effects.  What a mess this has become, he needs medicines to protect him from the other medicines.  His little body is going through a lot, I just hope that he tolerates the new drugs well.  So far his bad days are usually Friday, Saturday and Sunday.  I used to look forward to the weekend, now I'm not so sure I like it that much.